The worst thing about having a mystery illness is the acceptance that you will probably never know…. convincing yourself that maybe those people who told you that it might/probably never bother you again were right after all.

Then discovering you might know what it is after all, something that made the short list before but you’d still have to have a rare (never before seen) form of… and only figured out because you were trying to help someone else.

I have to call my gp and neuro in the morning and collect all my last test results. And then I have to call Dr. Cowden (pulmononlogist) and ask to be seen ASAP.

I don’t know if I want to be right or wrong.

Wrong means we still don’t know.
Right means we FINALLY do. It’s not that right is good for me, it’s not. In fact on the whole it’s worse for me.
Wrong means two people still have mystery problems to be determined.
Right means a dx and plan of action/treatment.

:(

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